Prikbord
Het Prikbord is van en voor alle mensen met een auto inflammatoire aandoening. Om informatie te vinden en te zoeken.
International patient organizations
- ENCA is the European network for children with arthritis and autoinflammatory diseases
- Autoinflammatory Alliance: Autoinflammatory Disease Information-Resources-Support
- AIFP Associazione Italiana Febbri Periodiche – AIFP FebbriPeriodiche
- Childhood Arthritis and Rheumatology Research Alliance: CARRA
- DADA2 Foundation — Supporting research into ADA2 deficiency.
- Home – Systemic Juvenile Idiopathic Arthritis Foundation
- Stills disease
- Благотворительный фонд “Подсолнух”
- Stop FMF: Asociación de Fiebre Mediterránea Familiar
- Taking control of the disease with help from my family
- RareConnect.org
- Jeugdreuma Vereniging
- Periodic Fevers – For Those Affected By Autoinflammatory Syndromes
Research
- Database of different mutations that causes autoinflammatory conditions
- Eurofever Project – The Eurofever registry
- ResearchGate | Find and share research
- Autoinflammatory – Frontiers
- New section in Autoimmune and Autoinflammatory Disorders – Moving clinical practice into the molecular diagnostic age
- All posts by Jonathan Hausmann
- Early-Onset Stroke and Vasculopathy Associated with Mutations in ADA2
- CAPS – NIH National Liberty of Medicine
- Autoinflammatory diseases – Meta
Umbrella Organizations
- The Paediatric Rheumatology INternational Trials Organisation (PRINTO) is an international research network
- PRES is a European scientific society
- ISSAID – International Society of Systemic Auto-Inflammatory Diseases
- VSOP: patient umbrella for rare and genetic disorder
- Patient federation Nederland
- EULAR | Welcome
- EURORDIS – The Voice of Rare Disease Patients in Europe
- Eurofever – The Eurofever registry
- Infevers – The registry of Hereditary Auto-inflammatory Disorders Mutations
Video’s
- De rol van interleukine-1 (IL-1) bij twee zeldzame auto-inflammatoire ziekten
- JAK (Janus Kinase Pathway) Inhibitor – werkingsmechanisme
- Interleukine 6 (IL6) fysiologie
- Interleukine 1 (IL1) fysiologie
- Novartis – I am rare
- Armando Hasudungan immunologie video’s
- Een levenslange uitdaging: periodieke koortssyndromen
- Periodieke koortssyndromen
- Rheumatic Disease and the Human Condition – Dr Dan Kastner
- Human type I interferonopathies – Dr. Yanick Crow
- TNF Receptor Associated Periodic Syndrome & Hyper IgD Syndrome – Dr Helen J Lachmann
- The spectrum of NLRP3-mediated autoinflammatory diseases by Dr. Marco Gattorno
- Patients with Difficult-to-Treat MKD/HIDS
- A brief history of autoinflammatory diseases by Dr. Jonathan Hausmann
- Introduction: Managing Your Autoinflammatory Disease Lifestyle and Wellness Workshop by Dr. Dedeoglu