Friends of KAISZ fund

Our mission is to support patients with autoinflammatory diseases in obtaining the best possible care and quality of life (‘improving the patient journey’) and to drive and fund research, in collaboration with our stakeholders.

Our stakeholders are patients and their families, medical specialists, the pharmaceutical industry and government agencies.

Objectives

Our objectives are:

  1. that patients with an autoinflammatory disease, in the Netherlands or abroad, have access to the right specialists and medication and that the time to diagnosis is as short as possible;
  2. that relevant research takes place through our involvement and (partial) funding of this research by the KAISZ fund.
Activities

Our activities are aimed at matters that help us achieve the above-mentioned objective, and include:

  • Financing essential services (such as transport) for patients within the EU without access to specialists and/or medication;
  • Financing educational material that can increase the knowledge and awareness of autoinflammatory diseases;
  • (Financing of the) translation of the scientific results of research to our stakeholders into a language they can understand.