October 24, 2021

In the PReS session of 2021, there was a group of teenagers with their experience of Autoinflammatory diseases, focusing on doctor’s visits. They mainly give advice to specialists on how to deal with teenagers or children with a rare disease in general, although they all suffer from an Autoinflammatory disease. Due to the Corona pandemic, the adolescents could only discuss things online, which made it difficult to communicate properly. As a solution to this, they decided to set up a video call every month which eventually resulted in a presentation, they discussed this to perfect it even more and recorded it through Zoom so that their faces were also visible during the presentation. The recording of the session can also be seen on YouTube: